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Alendronic Acid because of prednisolone Options
Anne-P
#1 Posted : Wednesday, February 16, 2011 11:18:00 AM Quote
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Hi Folks

Has any one else been given Alendronic Acid and Calceos because they are on steriods?

I'm cautious adding another drug into the mix as I'm just about to start Humira - but my GP said these are to reduce getting osteoporosis. I'm wondering how important this actually is... especially as I'm due to start cutting down the prednisolone once the Humira kicks in (which I hope it does!).

Hope someone can help. ThumpUp

Anne



Rose-B
#2 Posted : Wednesday, February 16, 2011 12:19:15 PM Quote
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Hello Anne,

Sorry I have not taken or have any knowledge of the drugs mentioned, apart from Humira as
I hope to start also on this soon (sat in my fridge ) just waiting for an infection to disappear.

Someone I am sure will post on here for you

Rose
jenni_b
#3 Posted : Wednesday, February 16, 2011 4:00:09 PM Quote
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hi

i have taken calcium tablets when i have been on large doses of steroids.

jenni
how to be a velvet bulldoser
JulieM
#4 Posted : Wednesday, February 16, 2011 4:02:16 PM Quote
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Hello Anne,
I'm not on steroids but my husband is and he too takes Alendronic Acid and Calcium.
I was wondering how long you've been on steroids becuase long term use can cause osteoporosis so i would think it best to take them to protect your bones, especially as you may not need to be on steroids for much longer -fingers crossed!
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
LynW
#5 Posted : Wednesday, February 16, 2011 7:08:59 PM Quote
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Hi Anne

I worry when I am able to answer so many posts!!! I am either a hypochondriac or ill!!! RollEyes

I am on prednisolone, starting out on very high doses 23 years ago but for the last couple of years, maybe longer as I've lost track, I have dropped to a maintenance dose of 3mg. It is unlikely I will ever be able to come off them completely.

I am on Adcal D3. This is a combination tablet containing calcium carbonate and colecalciferol. It is used in RA patients to help prevent osteoporosis which can be caused by, usually long term, steroid use. It's a preventative medication rather than a treatment and if your doctor feels it is appropriate I would definitely take it, at least whilst you are taking the steroids. It isn't a drug as such so don't worry about taking it.

The Alendronic acid I'm not sure about. However the GP must have a reason for prescribing it so I would try it for now. Just watch out for side effects!

Hope you get a good response from Humira,

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

sally-T
#6 Posted : Thursday, February 17, 2011 11:05:22 AM Quote
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Hi Anne, I was on Alendronic Acid for nearly a year because of steroids. I stopped taking it because I read in the press results of studies that indicated that some people on this drug developed oesophageal cancer. When I spoke to my consultant and pharmacist about it they said the studies were flawed and they were not advising their patients to stop taking it. However, I took the decision to stay off it. Not sure if it was the right decision as I now have osteopeania which is the pre-cursor to osteoporosis. I take Adcal D3 and am trying to increase the calcium in my diet and also walk when I can. I, too, am hoping to get off the steroids soon but I've been saying that for 18 months now. Sadly, some people can't get off them. Hope this helps and hasn't scared you off taking it AA.
Sheila-R
#7 Posted : Thursday, February 17, 2011 12:41:52 PM Quote
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Hi Anne,
I also take Alendronic acid, and Adcal D3, was put on it after being on steriods for about 3 months by the conusltant, as I still take 8.5 of prednisolone nearly 3 years on (trying to reduce) I figured that although it was another drug to take its only once a week, and if it does what it says on the label then its better than ending up with osteroperosis as well as RA. Maybe I'm a little un cautious as I take everything prescribed in the hope that it will help in some way. The only downside to it is that I can't have my cup of coffee first thing in the morning, on the day I take it or go straight back to bed as you are supposed to stand up (ha ha) or sit up straight and just take it with water and nothing else for 30 minutes. There's usually ways round this, I just alter the routine on that morning by showering first or if I'm particulary rough take it the day after I should. Probably not supposed to do this but it seems to work for me.
Good luck with it,
best wishes
Sheila
Anne-P
#8 Posted : Thursday, February 17, 2011 7:06:24 PM Quote
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Location: South Hampshire
Thanks for all your advice. I'm going to wait a while as I start the humira in a weeks time - and I want to know what side effects that causes before adding anything else!! Having read Jenni's story - and also having neurological issues - I'd like to see how the humira works out in case it increases the nerve pain I already have! (which I take gabapentin for).

THe calcium and Vit D sounds ok - but the alendronic acid can wait!! I think my GP is just trying to find things that might help - and I've only been on the steriods 3 months! The plan is to reduce them down if the Humira works.

I am so glad I've logged in to the Forum - it has made me feel not so alone.

Anne BigGrin
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